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Table 1 Number of children sampled in SPARCLE2, by SPARCLE1 status, region and participation status in SPARCLE2

From: Predictors of drop-out in a multi-centre longitudinal study of participation and quality of life of children with cerebral palsy

  Population-based registers  
  North England* Northern Ireland* West Sweden* East Denmark* South west Ireland** Central Italy** South east France South west France** North west Germany ALL REGIONS
  n (%) n (%) n (%) n (%) n (%) n (%) n (%) n (%) n (%) n (%)
Longitudinal sample                     
  SPARCLE1 participants 116 (100) 102 (100) 83 (100) 115 (100) 98 (100) 85 (100) 67 (100) 77 (100) 75 (100) 818 (100)
   Participated in SPARCLE2 80 (69) 85 (83) 68 (82) 77 (67) 74 (76) 41 (48) 50 (75) 55 (71) 64 (85) 594 (73)
   Did not participate in SPARCLE2 36 (31) 17 (17) 15 (18) 38 (33) 24 (24) 44 (52) 17 (25) 22 (29) 11 (15) 224 (27)
Supplementary sample                     
  (i) Children sampled in SPARCLE1, who                     
   did not participate in SPARCLE1          10 (100)    53 (100) 18 (100)    81 (100)
   Participated in SPARCLE2          1 (10)    7 (13) 1 (6)    9 (11)
   Did not participate in SPARCLE2          9 (90)    46 (87) 17 (94)    72 (89)
  (ii) Children not sampled in SPARCLE1 60 (100) 22 (100)    33 (100) 5 (100) 1 (100) 38 (100) 22 (100) 10 (100) 191 (100)
   Late registrations 31   22     0   3   1   12   22     91  
   Incomers 2   0     0   2   0   0   0     4  
   On register for SPARCLE1    but not sampled 27   0     33   0   0   25 0     85  
   Missed in SPARCLE1 0   0     0   0   0   1   0     1  
Participated in SPARCLE2 29 (48) 3 (14)    9 (27) 2 (40) 1 (100) 8 (21) 2 (9) 10 (100) 64 (34)
Did not participate in SPARCLE2 31 (52) 19 (86)    24 (73) 3 (60) 0 (0) 30 (79) 20 (91) 0 (0) 124 (66)
All SPARCLE2 participants 109   88   68   86   77   42   65   58   74   667  
  1. * In these regions, a random sample of eligible children was targeted in SPARCLE1.** in these regions, all eligible children were targeted. † Southeast France did not include in SPARCLE1 all registered children in the eligible range of dates of birth; this was partially rectified. in SPARCLE2.