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Table 3 Collection of data for Aus-ALL, Aus-CBT and ISET from participants invited in the clinic

From: Participation in paediatric cancer studies: timing and approach to recruitment

  Aus-ALL1 Aus-CBT1 ISET2
Number consented 416 374 52
Time lag between consent and data collection (median days) 58 50 25
% of cases invited within 5 months of diagnosis 93.6% 72.1% 73.7%
Data collected (% of consented) 388 (93%) 301 (81%) 43 (88%)
DNA Sample from child (% of consented) 415 (99%) 358 (96%)  
DNA sample from mother (% of consented) 414 (99%) 351 (94%)  
DNA samples from child and both parents (% of consented) 363 (87%) 278 (74%)  
  1. 1 Data were collected in a self-administered postal questionnaire.
  2. 2 Data were collected in a telephone interview.