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Table 3 Collection of data for Aus-ALL, Aus-CBT and ISET from participants invited in the clinic

From: Participation in paediatric cancer studies: timing and approach to recruitment

 

Aus-ALL1

Aus-CBT1

ISET2

Number consented

416

374

52

Time lag between consent and data collection (median days)

58

50

25

% of cases invited within 5 months of diagnosis

93.6%

72.1%

73.7%

Data collected (% of consented)

388 (93%)

301 (81%)

43 (88%)

DNA Sample from child (% of consented)

415 (99%)

358 (96%)

 

DNA sample from mother (% of consented)

414 (99%)

351 (94%)

 

DNA samples from child and both parents (% of consented)

363 (87%)

278 (74%)

 
  1. 1 Data were collected in a self-administered postal questionnaire.
  2. 2 Data were collected in a telephone interview.