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Table 2 Participants knowledge of their cleft lip and palate (n = 71)

From: Disclosure of congenital cleft lip and palate to Japanese patients: reported patient experiences and relationship to self-esteem

  n (%)
Age when participants noticed their mouth/lip was different   
 Pre-elementary school (0–5 years) 30 (42.3)
 Early elementary school (6–8 years) 29 (40.8)
 Late elementary school (9–11 years) 8 (11.3)
 Junior high school (12–15 years) 4 (5.6)
Action upon noticing their CL/P   
 Asked someone 38 (53.5)
 Did not ask anyone 28 (39.4)
 Other response/No answer 5 (7.0)
Explanation provided by others upon asking (multiple answers)   
 Condition name 11 (15.5)
 Identified as a malformation 19 (26.8)
 Congenital etiology 28 (39.4)
 Cause 8 (11.3)
 False explanation 17 (24.0)
Age when participants learned the name, cause, and congenital name of malformation   
 Pre-elementary school 9 (12.7)
 Early elementary school 10 (14.0)
 Late elementary school 15 (21.1)
 Junior high school 11 (15.5)
 High school 4 (5.6)
 Post-high school (≥19 years) 22 (30.1)
a Manner that participants obtained the above information (n = 70)   
 Told by someone 40 (57.1)
 Learned on own 22 (31.4)
 Learned by chance 8 (11.4)
  1. CL/P, cleft lip and palate.
  2. aParticipants learned of their own CL/P from the following individuals: mother (n = 24), attending physician (n = 3), other physician (n = 2), father (n = 2), friend (n = 2), or other (n = 7).