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Table 1 Overview of the questionnaires of version 1, 2, and 3

From: Assessing the application of non-pharmacological interventions for people with dementia in German nursing homes: feasibility and content validity of the dementia care questionnaire (DemCare-Q)

Version

  

Version

 

1

2

3

Lead-in question

Response format

1

2

3

Response-set

No.

No.

No.

    

Assessments

1.

1.

/

Was an assessment conducted with a standardized instrument?

MR

/

Behavior

/

Cognition

/

Pain

/

Depression

/

/

Quality of life

/

/

Mobility

/

/

Nutrition

/

/

Care dependency

/

Other

2.

2.

/

How was the pain assessment (PA) conducted?

RO

/

Self-rated pain assessment

Proxy-rated pain assessment

3.

3.

/

Which instrument was used for self-rated PA?*

RO

/

Numerical rating scale

Visual analogue scale

Verbal rating scale

Smiley scale

Face pain scale

Other

4.

4.

/

Which instrument was used for proxy-rated PA?*

RO

/

BESD©

BISAD©

ECPA©

ZOPA©

Doloplus

Other

/

/

6.

Was a PA conducted with a standardized instrument?

Y/N

/

/

 

/

/

7.

Which instrument was used for PA?*

RO

/

/

Numerical rating scale

Visual analogue scale

Verbal rating scale

Smiley scale

Face pain scale

BESD©

BISAD©

ECPA©

ZOPA©

Doloplus

        

Self-developed

Understanding diagnostics

5.

5.

1.

Has a case conference (CC) been held since the resident moved into the nursing home?

Y/N

 

6.

6.

2.

When was the last CC conducted?*

FT

 

/

6.1

2.1

Estimated period of time*

FS

/

During the last week

Within the last four weeks

Longer than four weeks ago

7.

7.

3.

Who took part in the last CC?*

MR

Resident

Relative

Official legal guardian

Head nurse

Members of the nursing team

Other care staff

Physician

Therapeutic staff

Other

8.

8.

/

For what reason was the last CC conducted?*

MR

Admission to nursing home

Health in general

Pain

/

/

4.

Why was the last CC conducted?*

Problematic situations caused by challenging behavior

Hospital stay

Needs and wishes of the resident/relatives

Other

9.

9.

 

What was the content of the last CC?*

MR

Reasons for challenging behavior

Biography

/

/

5.

What were you talking about in the last CC?*

Decisions on care planning

Changes in medication

Discussion of previous care plans

Needs of the resident

/

Daily activities

/

Enhancement of competencies

/

Relations of residents among each other

     

Other

Reminiscence therapy

10.

10.

8.

Was the biography of the resident assessed?

Y/N

 

11.

11.

9.

Which topics were assessed?*

MR

Important events in childhood- youth

Important events in adulthood

/

/

Professional life

Hobbies

Favorite food-drinks

Events of the day

Personality

/

Relationships-social environment

/

Habits

Other

12.

/

/

Who was involved in the biography assessment?*

MR

/

/

Resident

/

/

Relatives-friends

/

/

Official legal guardian

/

/

Physician

/

/

Other

13.

12.

10.

Was anything added to the biography assessment after initial assessment?*

Y/N

 

Multisensory stimulation

14.

/

/

Which of the following multisensory stimulation interventions have been applied, and if so, how often?

     

Aroma therapy

FS

/

/

Daily/Weekly/Irregular

Hand massage

FS

/

/

Rhythmical massages

FS

/

/

Snoezelen in a snoezelen room

FS

/

/

Snoezelen in the resident’s room

FS

/

/

Listening to relaxation music

FS

/

/

Listening to individual preferred music

FS

/

/

/

13.

11.

Are there multisensory stimulation interventions applied?

Y/N

/

 

/

14.

/

What kind of stimulation interventions?*

FT

/

/

 

/

/

12.

MR

/

/

Aroma therapy

Sound therapy

Massages

Basal stimulation®

Snoezelen

Cuddling pets

Touching different materials

       

Other

Validation therapy

15.

15.

13.

Is validation therapy applied?

Y/N

 

16.

/

/

How is validation therapy implemented?*

MR

Integrated in daily communication/ Validating attitude

    

In single sessions with the resident

In group sessions

     

/

As a crisis intervention

Physical activities

17.

16.

15.

How often was the resident in the open air during the last week (e.g., on the balcony, in the garden, out for a walk)?

FS

Several times a day/Daily/4-6 times a week/1-3 times a week/Not at all

18.

17.

/

Did the resident use any physical activities?

Y/N

 

/

/

16.

Did the resident use any physical activities offered during the last week?

19.

18.

17.

Type of physical activity*

MR

Gymnastics

Dance

Sports-games (e.g., bowling, ball games, games using a console (e.g., Wii))

Taking a walk

/

/

Physiotherapy

/

/

Occupational therapy

Other

20.

/

/

Reason for non-participation*

MR

/

/

Not interested

/

/

Not able due to functional restraints

/

/

Not able due to cognitive restraints

/

/

Immobile

/

/

Other

21.

/

/

How often was the resident physically active at a minimum of 30 minutes at a stretch during the last week?

FS

3x or more often/ 1-2x/ none

 

19.

18.

How often was the resident physically active (e.g. participation on gymnastics or taking a walk) at a minimum of 30 minutes at a stretch during the last week?

     

Management of acute crisis intervention

22.

/

/

Has an acute psychiatric crisis occurred since admission that required nursing interventions?

Y/N

 

/

20.

/

Has an acute psychiatric crisis occurred during the last year that required nursing interventions?

     

/

/

19.

Has an acute psychiatric crisis occurred during the last six months that required nursing interventions?

     

/

21.

20.

Frequency of acute crisis during the last year during the last six months*

FS

/

1-2 times/ 3–4 times/ 5–6 times/more often

Frequency of acute crisis during the last six months*

23.

22.

21.

Applied interventions to manage the crisis*

MR

Consultation with next of kin

Calming talk

Supporting the resident’s emotions

Protecting the resident from others

Consultation with a physician

Use of psychotropic medication

Use of physical restraints

Hospital admission

/

Offering a possibility to reduce physical aggression

Other

Total number of

Lead-in questions

 

Responses

 

23

22

21

 

81

79

78

 
  1. MR –Multiple response RO-Response option FS-Frequency scale FT-Free text Y/N-Yes/No.
  2. *Depending on previous question (conditional question).