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Table 2 Strategies for endless caregiving at home by family caregivers

From: Experiences of “endless” caregiving of impaired elderly at home by family caregivers: a qualitative study

Category

Concepts

Addition of a positive meaning of the use of caregiving services

Balance between caregiving and work is a mandatory requirement

Activity that is necessary for people in need of caregiving and whose condition has medical significance

Alternatives to caregiving contents that cannot be performed at home

Management of the use of caregiving services under the initiative of caregivers

Use of multiple services to match caregivers’ rhythm of life

Actively using short-stay services where caregivers are highly effective for respite care

Receiving assistance that can be accomplished without making considerable changes in the lifestyles of family members and relatives

Time and schedule adjustment for replacements to take over caregiving

Content of reasonable assistance

Sharing time other than that spent for nursing care

Obtaining available assistance from neighbors and friends as necessary

Exchange of information regarding long-term caregiving

Sharing of thoughts regarding caregiving, and encouragements

General knowledge regarding caregiving

Assistance for daily living

Re-definition of caregiving needs

Perceiving as though there would be no problem even if burdensome acts in caregiving were modified and replaced with an assistance method that could be used for caregiving

Simplifying life support because of the recipient’s advanced age

Thinking that for the caregiver, medical staff members who come to visit for purposes other than caregiving also play a role as replacements

Caregiving is performed using the caregiver’s own methods, without intervention by any specialist

Not caring for treated chronic diseases unless they affect daily life