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Table 1 A detailed description of SA-PCHORD variables according to the information categories, type and completeness of the data

From: Development of South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset

Information category

Existing variable

New variable

Value label

Variable type

Value categories

Completeness (%)

Patient

Patient identification number

 

Randomly generated patient identification number

Numeric

 

100 

State

 

State identification

Categorical

[VIC; SA]

100 

 

Age at diagnosis

Patient’s age at diagnosis, derived from date of birth

Numeric

 

100

 

Age groups

Ten year age groups, derived from age at diagnosis

Categorical

[<55; 55–65; 66–75; >75]

100

Date of death

 

Date of death

Date

 

NA

Postcode of residence

 

Postcode of residence

Numeric

 

97.6

 

SEIFA score

Postcode of residence linked with SEIFA-2011

Numeric

 

97.6

 

SEIFA decile

Postcode of Residence linked with SEIFA-2011

Categorical

[1..10]

97.6

Diagnosis

Date of diagnosis

 

Date of diagnosis

Date

 

100

 

Year of diagnosis

Derived from date of diagnosis

Numeric

 

100

Diagnosis procedure type

 

Biopsy type

Categorical

[TRUS; TURP; other]

96.9

PSA at diagnosis

 

PSA levels at diagnosis

Numeric

 

86.6

Gleason primary score

 

Biopsy Gleason primary score at diagnosis

Numeric

 

92.9

Gleason secondary score

 

Biopsy Gleason secondary score at diagnosis

Numeric

 

92.8

Gleason tertiary score

 

Biopsy Gleason tertiary score at diagnosis

Numeric

 

89.6

Gleason total score

 

Biopsy Gleason total score at diagnosis

Numeric

 

97.5

Biopsy number

 

Biopsy number to identify multiple biopsies

Numeric

 

100

Biopsy type

 

Biopsy type

Categorical

[TRUS; TURP; TURBT; transperineal biopsy; clinical investigation (e.g. bone scan, CT, MRI); histology of metastatic site (bone biopsy or lymph node biopsy); prostatectomy (simple, diagnostic); other; unknown]

97.4

Biopsy date

 

Biopsy date

Date

 

100

Total number of cores

 

Total number of cores taken

Numeric

 

78.1

Total number of positive cores

 

Total number of positive cores

Numeric

 

78.1

Gleason primary score

 

Biopsy Gleason primary score for each biopsy

Numeric

 

89.7

Gleason secondary score

 

Biopsy Gleason secondary score for each biopsy

Numeric

 

89.5

Gleason tertiary score

 

Biopsy Gleason tertiary score for each biopsy

Numeric

 

NA

Gleason total score

 

Biopsy Gleason total score for each biopsy

Numeric

 

93.8

Perineural invasion

 

Perineural invasion flag

Categorical

[Yes; no]

100

Lymphovascular invasion

 

Lymphovascular invasion flag

Categorical

[Yes; no]

100

T-stage at diagnosis

 

T-stage at diagnosis

Categorical

[TX (cannot be assessed);T0; T1; T1a; T1b; T1c; T2 l; T2a; T2b; T2c; T3; T3a; T3b; T4; T4a; T4b]

53.4

N-stage at diagnosis

 

N-stage at diagnosis

Categorical

[NX (cannot be assessed); N0; N1; inconclusive]

63.7

M-stage at diagnosis

 

M-stage at diagnosis

Categorical

[MX (cannot be assessed); M0; M1a; M1b; M1c; inconclusive]

63.7

 

NCCN

NCCN stage calculated according to the formula from clinical T-stage, PSA level and Gleason score at diagnosis

Categorical

[Low; intermediate; high; very high; metastatic]

92.4

Treatment

Treatment type

 

First treatment type

Categorical

[AA; ADT; Brachytherapy; Chemotherapy; EBRT; HDR; LDR; RALRP; low dose agonists; ORPR other; recent biopsy; WW]

93 

Treatment date

 

First treatment date

Date

 

93

 

Treatment group

Treatment group derived from treatment type

Categorical

[Surgery; radiation therapy; ADT; AS, WW; other; unknown]

92.8

 

Time to the first treatment

Time (days) to the first treatment, derived from date of diagnosis and date of first treatment

Numeric

 

72.5

Radiotherapy

     

N = 38,052

 

Radiotherapy type

 

Type of radiotherapy received, can be multiple treatments

Categorical

[EBRT radical; EBRT palliative; brachytherapy]

(100)

Start radiotherapy date

 

Date of start radiotherapy

Date

 

100

Dose

 

Dose (amount) of radiotherapy

Numeric

 

32.9

Fractions

 

Fractions of radiotherapy given

Numeric

 

29.7

Dose rate

 

Type of dose of radiotherapy

Categorical

[LDR; HDR]

21.7

Surgery

     

N = 5874

 

Operation date

 

Date of operation

Date

  

Operation type

 

Type of the operation

Categorical

[RALRP; laparoscopic radical; ORPR; other]

(97.8)

Gleason primary score

 

Gleason primary score at operation

Numeric

 

96.4

Gleason secondary score

 

Gleason secondary score at operation

Numeric

 

96.4

Gleason tertiary score

 

Gleason tertiary score at operation

Numeric

 

10.5

Gleason total score

 

Gleason total score at operation

Numeric

 

96.4

Extraprostatic invasion

 

Extraprostatic invasion flag

Categorical

[Yes; no]

97.7

Perineural invasion

 

Perineural invasion flag

Categorical

[Yes; no]

97.7

Lymphovascular invasion

 

Lymphovascular invasion flag

Categorical

[Yes; no]

99.1

Post- surgery pathology T

 

Post-surgery pathology T stage

Categorical

[TX (cannot be assessed);T0; T1; T1a; T1b; T1c; T2 l; T2a; T2b; T2c; T3; T3a; T3b; T4; T4a; T4b]- T4b

97

Post- surgery pathology N

 

Post-surgery pathology N stage

Categorical

[NX (cannot be assessed); N0; N1; inconclusive]

96

Seminal vesical invasion

 

Seminal vesical invasion flag

Categorical

[Yes; No]

95.7

Margin status

 

Pathological margins status

Categorical

[Present; absent; abuts margin; equivocal]

96.5

ADT

Type of treatment

 

Type of hormones prescribed

Categorical

[Chemical; surgical]

N = 2734 (99.7)

Start date

 

Start date of hormones treatment

Date

 

100

Class

 

Type/class of hormones

Categorical

[Palliative; adjuvant]

100

Chemotherapy

Chemo agent

 

Chemotherapy treatment flag

Categorical

[Yes; no]

N = 70

(100)

Chemo start date

 

Start of chemotherapy treatment

Date

 

100

Other treatment

Other treatment type

  

Categorical

[AS; WW; No treatment]

N = 2602

(100)

Other treatment date

  

Date

 

15 (VIC–NA)

PSA

  

Other treatment type

   
 

Additional/subsequent/secondary treatment type

 

Date of other/additional treatment

Categorical

[AA; ADT; Brachytherapy; chemotherapy; EBRT; HDR; LDR; RALRP; low dose agonists; ORRP; other; recent biopsy; WW]

N = 12,039 (100)

 

Treatment group

Treatment group derived from treatment type

Categorical

[Surgery; radiation therapy; hormones; AS/WW; other; unknown]

100

Treatment date

 

Treatment date

Date

 

100

PSA available

 

PSA available flag

Categorical

[Yes; no]

100

PSA date

 

Date of PSA taken

Date

 

95.3

PSA value

 

PSA value at treatment

Numeric

 

94.5