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Table 1 A detailed description of SA-PCHORD variables according to the information categories, type and completeness of the data

From: Development of South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset

Information category Existing variable New variable Value label Variable type Value categories Completeness (%)
Patient Patient identification number   Randomly generated patient identification number Numeric   100 
State   State identification Categorical [VIC; SA] 100 
  Age at diagnosis Patient’s age at diagnosis, derived from date of birth Numeric   100
  Age groups Ten year age groups, derived from age at diagnosis Categorical [<55; 55–65; 66–75; >75] 100
Date of death   Date of death Date   NA
Postcode of residence   Postcode of residence Numeric   97.6
  SEIFA score Postcode of residence linked with SEIFA-2011 Numeric   97.6
  SEIFA decile Postcode of Residence linked with SEIFA-2011 Categorical [1..10] 97.6
Diagnosis Date of diagnosis   Date of diagnosis Date   100
  Year of diagnosis Derived from date of diagnosis Numeric   100
Diagnosis procedure type   Biopsy type Categorical [TRUS; TURP; other] 96.9
PSA at diagnosis   PSA levels at diagnosis Numeric   86.6
Gleason primary score   Biopsy Gleason primary score at diagnosis Numeric   92.9
Gleason secondary score   Biopsy Gleason secondary score at diagnosis Numeric   92.8
Gleason tertiary score   Biopsy Gleason tertiary score at diagnosis Numeric   89.6
Gleason total score   Biopsy Gleason total score at diagnosis Numeric   97.5
Biopsy number   Biopsy number to identify multiple biopsies Numeric   100
Biopsy type   Biopsy type Categorical [TRUS; TURP; TURBT; transperineal biopsy; clinical investigation (e.g. bone scan, CT, MRI); histology of metastatic site (bone biopsy or lymph node biopsy); prostatectomy (simple, diagnostic); other; unknown] 97.4
Biopsy date   Biopsy date Date   100
Total number of cores   Total number of cores taken Numeric   78.1
Total number of positive cores   Total number of positive cores Numeric   78.1
Gleason primary score   Biopsy Gleason primary score for each biopsy Numeric   89.7
Gleason secondary score   Biopsy Gleason secondary score for each biopsy Numeric   89.5
Gleason tertiary score   Biopsy Gleason tertiary score for each biopsy Numeric   NA
Gleason total score   Biopsy Gleason total score for each biopsy Numeric   93.8
Perineural invasion   Perineural invasion flag Categorical [Yes; no] 100
Lymphovascular invasion   Lymphovascular invasion flag Categorical [Yes; no] 100
T-stage at diagnosis   T-stage at diagnosis Categorical [TX (cannot be assessed);T0; T1; T1a; T1b; T1c; T2 l; T2a; T2b; T2c; T3; T3a; T3b; T4; T4a; T4b] 53.4
N-stage at diagnosis   N-stage at diagnosis Categorical [NX (cannot be assessed); N0; N1; inconclusive] 63.7
M-stage at diagnosis   M-stage at diagnosis Categorical [MX (cannot be assessed); M0; M1a; M1b; M1c; inconclusive] 63.7
  NCCN NCCN stage calculated according to the formula from clinical T-stage, PSA level and Gleason score at diagnosis Categorical [Low; intermediate; high; very high; metastatic] 92.4
Treatment Treatment type   First treatment type Categorical [AA; ADT; Brachytherapy; Chemotherapy; EBRT; HDR; LDR; RALRP; low dose agonists; ORPR other; recent biopsy; WW] 93 
Treatment date   First treatment date Date   93
  Treatment group Treatment group derived from treatment type Categorical [Surgery; radiation therapy; ADT; AS, WW; other; unknown] 92.8
  Time to the first treatment Time (days) to the first treatment, derived from date of diagnosis and date of first treatment Numeric   72.5
Radiotherapy       N = 38,052
  Radiotherapy type   Type of radiotherapy received, can be multiple treatments Categorical [EBRT radical; EBRT palliative; brachytherapy] (100)
Start radiotherapy date   Date of start radiotherapy Date   100
Dose   Dose (amount) of radiotherapy Numeric   32.9
Fractions   Fractions of radiotherapy given Numeric   29.7
Dose rate   Type of dose of radiotherapy Categorical [LDR; HDR] 21.7
Surgery       N = 5874
  Operation date   Date of operation Date   
Operation type   Type of the operation Categorical [RALRP; laparoscopic radical; ORPR; other] (97.8)
Gleason primary score   Gleason primary score at operation Numeric   96.4
Gleason secondary score   Gleason secondary score at operation Numeric   96.4
Gleason tertiary score   Gleason tertiary score at operation Numeric   10.5
Gleason total score   Gleason total score at operation Numeric   96.4
Extraprostatic invasion   Extraprostatic invasion flag Categorical [Yes; no] 97.7
Perineural invasion   Perineural invasion flag Categorical [Yes; no] 97.7
Lymphovascular invasion   Lymphovascular invasion flag Categorical [Yes; no] 99.1
Post- surgery pathology T   Post-surgery pathology T stage Categorical [TX (cannot be assessed);T0; T1; T1a; T1b; T1c; T2 l; T2a; T2b; T2c; T3; T3a; T3b; T4; T4a; T4b]- T4b 97
Post- surgery pathology N   Post-surgery pathology N stage Categorical [NX (cannot be assessed); N0; N1; inconclusive] 96
Seminal vesical invasion   Seminal vesical invasion flag Categorical [Yes; No] 95.7
Margin status   Pathological margins status Categorical [Present; absent; abuts margin; equivocal] 96.5
ADT Type of treatment   Type of hormones prescribed Categorical [Chemical; surgical] N = 2734 (99.7)
Start date   Start date of hormones treatment Date   100
Class   Type/class of hormones Categorical [Palliative; adjuvant] 100
Chemotherapy Chemo agent   Chemotherapy treatment flag Categorical [Yes; no] N = 70
(100)
Chemo start date   Start of chemotherapy treatment Date   100
Other treatment Other treatment type    Categorical [AS; WW; No treatment] N = 2602
(100)
Other treatment date    Date   15 (VIC–NA)
PSA    Other treatment type    
  Additional/subsequent/secondary treatment type   Date of other/additional treatment Categorical [AA; ADT; Brachytherapy; chemotherapy; EBRT; HDR; LDR; RALRP; low dose agonists; ORRP; other; recent biopsy; WW] N = 12,039 (100)
  Treatment group Treatment group derived from treatment type Categorical [Surgery; radiation therapy; hormones; AS/WW; other; unknown] 100
Treatment date   Treatment date Date   100
PSA available   PSA available flag Categorical [Yes; no] 100
PSA date   Date of PSA taken Date   95.3
PSA value   PSA value at treatment Numeric   94.5