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Table 1 Patient characteristics: phase I and II

From: Development of the pediatric daily ulcerative colitis signs and symptoms scale (DUCS): qualitative research findings

Patient characteristic Total patients Remission patients Active patients
Phase I n = 32 n = 22 n = 10
Age, y, mean ± SD 13.8 ± 2.6 14 ± 2.7 13.4 ± 2.6
 Range 8–17 8–17 9–17
Gender, n (%)
 Female 18 (56) 12 (55) 6 (60)
 Male 14 (44) 10 (45) 4 (40)
Race/ethnicity, n (%)
 Caucasian 26 (81) 17 (77) 9 (90)
 African American 3 (9) 3 (14)
 Asian 1 (3) 1 (5)
 Latino/a 2 (6) 1 (5) 1 (10)
PUCAI total score, n (%)
 0 19 (59) 19 (86)
 5 3 (9) 3 (14)
 10 1 (3) 1 (10)
 15 1 (3) 1 (10)
 20 4 (13) 4 (40)
 35 1 (3) 1 (10)
 45 2 (6) 2 (20)
 55 1 (3) 1 (10)
Patient characteristic Total patients Remission patients Active patients
Phase II n = 38a n = 22b n = 18b
Age, y, mean ± SD 12.84 ± 2.38 11.91 ± 2.11 14.06 ± 2.39
 Median 13 12 14
 Range 8–17 8–16 10–17
Gender, n (%)
 Female 22 (58) 12 (55) 12 (67)
 Male 16 (42) 10 (45) 6 (33)
PUCAI total score, n (%) n = 40a n = 22b n = 18b
 Average score, mean ± SD 12.25 ± 14.36 1.81 ± 2.46 25.00 ± 12.37
 Range 0–45 0–5 10–45
  0 14 (35) 14 (64)
  5 8 (20) 8 (36)
  10 4 (10) 4 (22)
  15 2 (5) 2 (11)
  20 2 (5) 2 (11)
  25 4 (10) 4 (22)
  35 2 (5) 2 (11)
  40 2 (5) 2 (11)
  45 2 (5) 2 (11)
  1. PUCAI Pediatric Ulcerative Colitis Activity Index, SD standard deviation, UC ulcerative colitis
  2. aTwo participants completed two sets of interviews, using two different diary versions. Both had different PUCAI scores at the time of each interview. Scores for all participants were calculated at the time of the first interview of each interview set
  3. bBoth participants who completed two sets of interviews changed disease status (i.e., remission vs active) between the first and second interview. For these participants, their characteristics are counted once in each disease status category