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Table 2 Phase II caregiver/child (≤ 10 years) characteristics

From: Development of the pediatric daily ulcerative colitis signs and symptoms scale (DUCS): qualitative research findings

Characteristics Total caregivers (n = 7)a Children in remission (n = 5)b Children with active UC (n = 3)b
Caregiver’s age, y, mean ± SD 40.29 ± 5.79 44.00 ± 5.61 37.33 ± 6.11
 Median 40 44 36
 Range 32–49 37–50 32–44
Child’s age, y, mean ± SD 8.29 ± 1.70 9.20 ± 0.84 7.33 ± 2.31
 Median 9 9 6
 Range 6–10 8–10 6–10
Caregiver’s gender, n (%)
 Female 7 (100) 5 (100) 3 (100)
 Male 0 (0) 0 (0) 0 (0)
Child’s gender, n (%)
 Female 4 (57) 4 (80) 1 (33)
 Male 3 (43) 1 (20) 2 (67)
Child’s PUCAI total score as reported by caregiver, n (%) (n = 8)a (n = 5)b (n = 3)b
 Average score, mean ± SD 14.38 ± 14.2 2.00 ± 2.74 35.00 ± 10.00
 Range 0–45 0–5 25–45
  0 3 (38) 3 (60)
  5 2 (25) 2 (40)
  25 1 (13) 1 (33)
  35 1 (13) 1 (33)
  45 1 (13) 1 (33)
  1. PUCAI Pediatric Ulcerative Colitis Activity Index, SD standard deviation, UC ulcerative colitis
  2. aOne participant completed two sets of interviews, using two different diary versions. The child had different PUCAI scores at the time of each interview. Scores for all participants were calculated at the time of the first interview of each interview set
  3. bThe participant who completed two sets of interviews changed disease status (i.e., remission vs active) between the first and second interview. For this participant, characteristics are counted once in each disease status category