Table 1 Data collection parameters for phase two
From: The physical sequelae of perinatally acquired HIV in adolescents: a research proposal
Data collected during clinical assessments | Outcome measure tool | Explanation of outcome measure |
|---|---|---|
Fatigue | HIV related fatigue scale | A 56-item questionnaire used to establish levels of fatigue in people with HIV |
Endurance | Six minute walk test | A measure of distance walked in 6 min to establish a person’s endurance |
Motor function impairment | Movement assessment battery for children—second edition (movement ABC-2) | A tool used to assess fine and gross motor impairment in children and adolescents |
Peripheral neuropathy | Brief peripheral neuropathy screen | A tool used to assess peripheral neuropathy in people with HIV |
Muscle strength | Standing broad jump | An index of muscular fitness in children and adolescents established through three attempts at a standing broad jump |
Disability | World Health Organisation disability assessment schedule for children (WHODAS-Child) | A 36-item questionnaire for assessing disability in children and adolescents through rating levels of difficulty in daily activities |
Data collected from patient files | Outcome measure tool | Explanation of outcome measure |
|---|---|---|
Quality of life (QOL) | Pediatric quality of life inventory version 4.0 (PedsQLâ„¢ 4.0) | A 23-item tool establishing the quality of life in children and adolescents with chronic illness |
Body mass index | Weight/height squared | A measurement of weight in relation to height |
Clinical data | CD4; nadir CD4; viral load; age at initiation; drug regime; key co-morbidities | Clinical data pertaining to the participant’s HIV management |