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Table 3 Age and Sex Distribution among Disease Register Invitees, Participants, and Those Declining Invitation

From: A Disease Register for ME/CFS: Report of a Pilot Study

  All Invitees Not accepting Invitation Disease Register Participants
  No. cases % total (95%
confidence interval)
No. cases % total (95%
confidence interval)
No. cases % total (95%
confidence interval)
Sex
   Male 42 19.4 (7.2 - 31.7) 8 14.3 (0.0 - 39.0) 34 21.3 (7.2 - 35.3)
   Female 174 80.6 (74.6 - 86.6) 48 85.7 (75.6 - 95.8) 126 78.8 (71.5 - 86.0)
Age group
   < 25 26 12.3 (0.0 - 24.8) 6 10.7 (0.0 - 36.0) 20 12.5 (0.0 - 27.3)
   25-44 73 33.8 (22.7 - 44.9) 23 41.1 (20.6 - 61.6) 50 31.3 (18.1 - 44.4)
   45-64 132 61.1 (52.6 - 69.6) 32 57.1 (39.6 - 74.6) 100 62.5 (52.8 - 72.2)
   65+ 6 2.8 (0.0 - 16.2) 1 1.8 (0.0 - 29.3) 5 3.1 (0.0 - 18.7)
Ethnicity
   White British 157 72.6 (65.6 - 79.8) 12 21.4 (0.0 - 45.1) 145 90.6 (85.8 - 95.5)
   Other 12 5.6 (0.0 - 18.8) 1 1.8 (0.0 - 28.3) 11 6.9 (0.0 - 22.1)
   Not stated 47 21.8 (9.7 - 33.8) 43 76.8 (63.9 - 89.7) 4 2.5 (0.0 - 18.1)
Region
   London 29 13.4 (0.8 - 26.1) 16 28.6 (6.0 - 51.2) 13 8.1 (0.0 - 23.3)
   East Anglia 81 37.5 (26.7 - 48.3) 15 26.8 (3.9 - 49.7) 66 41.3 (29.1 - 53.4)
   Yorks./Humberside 105 48.6 (38.9 - 58.4) 25 44.6 (24.8 - 64.5) 80 50.0 (38.8 - 61.2)
   Not stated 1 0.4 (0.0 - 14.9) - 0.0 1 0.6 (0.0 - 16.4)
TOTAL 216 100.0 56 100.0 160 100.0