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Table 2 Multivariable logistic regression model relating drop-out between SPARCLE1 and SPARCLE2 to characteristics recorded in SPARCLE1

From: Predictors of drop-out in a multi-centre longitudinal study of participation and quality of life of children with cerebral palsy

Reason for drop-out:

(i) Not traced n/N = 51/805 (6%)

(ii) Death n/N = 32/754* (4%)

(iii) Refusal n/N = 119/710**(17%)

(iv) All non-response n/N = 214/804 (27%)

 

n/N

(%)

OR

(95%CI)

p

n/N

(%)

OR

(95%CI)

p

n/N

(%)

OR

(95%CI)

p

n/N

(%)

OR

(95%CI)

p

Child impairment: Walking ability

              

0.005

     

I. Walks without limitation

          

51/225

(22%)

1.0

(0.7 to 1.4)

      

II. Walks with limitation

          

15/147

(10%)

0.3

(0.2 to 0.6)

      

III. Walks with assistive devices

          

25/126

(20%)

0.8

(0.5 to 1.3)

      

IV. Unable to walk, limited self-mobility

          

15/100

(15%)

0.5

(0.3 to 0.9)

      

V. Unable to walk, severely limited self-mobility

          

13/112

(12%)

0.4

(0.2 to 0.8)

      

Child impairment: Feeding

         

<0.001

          

By mouth

     

14/700

(2%)

1.0

-

           

By tube (partially or completely)

     

18/54

(33%)

9.1

(4.0 to 21)

           

Information missing, excluded from analysis

     

0/1

(0%)

-

-

           

Child impairment: IQ

         

<0.001

          

≥50

     

4/533

(1%)

1.0

-

           

<50

     

28/221

(13%)

9.2

(2.9 to 29)

           

Information missing, excluded from analysis

     

0/5

(0%)

-

-

           

Parental educational qualifications

    

0.002

         

0.001

    

<0.001

Above university entry

5/201

(2%)

0.3

(0.1 to 0.7)

      

25/190

(13%)

0.6

(0.4 to 0.9)

 

36/201

(18%)

0.4

(0.3 to 0.7)

 

Intermediate

28/413

(7%)

1.0

(0.7 to 1.5)

      

57/359

(16%)

1.0

(0.8 to 1.3)

 

111/412

(27%)

1.0

(0.8 to 1.2)

 

None or lowest formal qualifications

18/191

(9%)

1.4

(0.8 to 2.4)

      

37/161

(23%)

1.9

(1.2 to 3.0)

 

67/191

(35%)

1.7

(1.2 to 2.4)

 

Information missing, excluded from analysis

0/6

(0%)

-

-

      

1/4

(25%)

-

-

 

3/6

(50%)

-

-

 

Parental stress

              

<0.001

    

<0.001

Below 75th percentile

          

73/517

(14%)

1.0

(0.7 to 1.3)

 

138/581

(24%)

1.0

(0.8 to 1.3)

 

Above 75th percentile

          

36/166

(22%)

2.2

(1.5 to 3.3)

 

60/190

(32%)

1.8

(1.3 to 2.5)

 

Not recorded

          

10/27

(37%)

4.3

(1.8 to 10.3)

 

16/33

(48%)

3.6

(1.7 to 7.6)

 

Family structure

                   

<0.001

Married, living with partner

               

135/567

(24%)

1.0

(0.8 to 1.2)

 

Unmarried, living with partner

               

35/81

(43%)

2.7

(1.7 to 4.3)

 

Single or separated and living with parents

               

10/18

(56%)

4.7

(1.7 to 13.0)

 

Single, living alone

               

34/138

(25%)

1.1

(0.7 to 1.6)

 

Information missing, excluded from analysis

               

0/1

(0%)

-

-

 

Region

    

<0.001

         

<0.001

    

<0.001

North England

6/114

(5%)

1.0

(0.4 to 2.3)

      

22/102

(22%)

1.0

(0.6 to 1.7)

 

34/114

(30%)

1.0

(0.6 to 1.5)

 

Northern Ireland

3/101

(3%)

0.5

(0.2 to 1.6)

      

8/93

(9%)

0.3

(0.2 to 0.7)

 

16/101

(16%)

0.4

(0.2 to 0.7)

 

West Sweden

1/81

(1%)

0.3

(0.0 to 1.9)

      

6/74

(8%)

0.4

(0.2 to 1.0)

 

13/81

(16%)

0.4

(0.2 to 0.8)

 

East Denmark

4/113

(4%)

1.1

(0.4 to 3.1)

      

26/103

(25%)

2.1

(1.3 to 3.5)

 

36/113

(32%)

1.9

(1.2 to 3.0)

 

Southwest Ireland

6/96

(6%)

1.3

(0.6 to 3.0)

      

12/85

(14%)

0.7

(0.3 to 1.3)

 

23/96

(24%)

0.8

(0.5 to 1.3)

 

Central Italy

16/85

(19%)

5.3

(3.0 to 9.2)

      

22/63

(35%)

2.6

(1.5 to 4.5)

 

44/85

(52%)

3.3

(2.1 to 5.2)

 

Southeast France

8/67

(12%)

3.0

(1.4 to 6.3)

      

7/57

(12%)

0.5

(0.2 to 1.2)

 

17/67

(25%)

0.9

(0.5 to 1.7)

 

Southwest France

6/74

(8%)

1.9

(0.8 to 4.5)

      

10/63

(16%)

0.7

(0.4 to 1.5)

 

21/73

(29%)

0.1

(0.7 to 1.9)

 

Northwest Germany

1/74

(1%)

0.2

(0.0 to 1.8)

      

6/70

(9%)

0.3

(0.1 to 0.8)

 

10/74

(14%)

0.3

(0.2 to 0.7)

 
  1. n = number of non-respondents; N = total number analysed; % = percentage non-responders; OR = odds ratio; CI = confidence interval; p = likelihood ratio test statistic p-value for removal of characteristic from model; OR above 1.0 indicate a greater risk of non-response in that category than in the reference category.
  2. For variables with more than two categories, 95%CI were based on quasi-variances [18].
  3. * The denominator for analysis of deaths was all traced families.
  4. ** The denominator for analysis of refusal was all traced families with live children, excluding those who had moved out of the region (13 families) or who had language problems (1 family).