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Table 2 Themes from Interviews with Community Health Center Staff

From: Lessons learned obtaining informed consent in research with vulnerable populations in community health center settings

1.

Health center staff faced challenges during the enrollment process related to:

 

Difficulty locating accurate patient contact information.

 

Difficulty reaching women when accurate contact information was available.

 

Understanding the cultural context of informed consent the patient population.

 

Conducting research in a clinical setting.

 

Difficulty locating accurate patient contact information.

 

Difficulty reaching women when accurate contact information was available.

 

Understanding the cultural context of informed consent the patient population.

 

Conducting research in a clinical setting.

2.

CHC staff was motivated to assist in the chart review study in order to use the results to better serve their patients and community.

3.

Trust in, and relationships with, CHCs and health center staff motivated patients to participate.

4.

Patient concerns centered on privacy and disclosure of their medical records.

5.

IRB procedures posed study barriers that included training for staff and consenting patients:

 

Complexity of the IRB training requirements for health center staff.

 

Complexity of consent form length, language, literacy level and cultural concerns of patients.